The doctor had hoped we would notice significant improvements over the last 3 months and that he wouldn't even have to re-scope him. Sadly, that was not the case.
In fact, during this second scope, they also discovered yet another reason why his breathing is so noisy. He also has a mild case of subglottic stenosis a.k.a. narrowing of the airway. So not only is his voicebox's cartilage weak and floppy but his vocal cords are narrower than average, both of which contribute to the stridor.
What does this mean? Well, it means we will be going to the ENT every 3 months until there is some significant change. It means we have to be extra careful about food allergies because the reactions could be life threatening for Cooper. It means Cooper is going to remain our human squeak toy until about 3 or 4 and will probably have to sit out of quiet games like sardines and hide-n-seek. (Thankfully surgery doesn't seem to be a concern unless it starts to worsen or interferes with his development.)
So hopes of Coop not remembering all of this are sort of evaporating. In fact, when we walked into the dimly lit procedure room where they do the scope, Cooper flipped out, like he knew or remembered something bad was going to happen.
But it could be worse. He could be refusing food, having difficulty swallowing and this could interfere with his ability to thrive. And it's not. He is definitely a healthy, growing, strong boy, with more perseverance than I have seen in a baby.
I am confident his thriving will continue and that one day he will be able to play hide-n-seek with his friends! :)
1 comment:
He is fortunate to have such wonderful parents--with such a great perspective.
Praying God continues to allow him to thrive--and that he will overcome these obstacles.
Blessings on your beautiful boy.
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